Anyone who knows me know I L.O.V.E a good candle. I’m desperate for the nights to start drawing in earlier so I can get the candles out in the lounge every evening. And just ask Wayne, it’s every night – without fail! Honestly I’m not sure what makes me happier than curling up in our Zen Den for a nice calm chilled evening! I’m not sure if it’s the warmth and the cosiness that’ does it for me, or the smells they create. Tea lights, smellies, cute holders, even those battery operated flickering church candles. Whack on some fairy lights too and I’m even more content.
Recently I’ve been getting in to aromatherapy and using certain smells to create certain moods. We all know aromatherapy and essential oils are good for stress – and considering my back problems, my psoriasis outbreaks and even my psoriatic arthritis were brought on by stress – I am trying lots of different methods to try and combat it; these oils being one of them.
Luckily I’m not suffering any flare-ups at the moment, (*touches alllll the wood in sight*) but I’m not getting complacent and I’m doing lots to create a very calming environment in the flat, and – especially at night time – make sure I’m chilled, content and relaxed. Here’s what I’ve been adding in to my evening routine;
I improved my evening skincare routine – I recently treated myself to a facial and remembered how GOOD it feels. I wasn’t able to have the treatment I’d booked in for because my skin is uber sensitive due to the chemo, so I opted for a less-invasive one which was still really good and included some light-therapy. The calming, therapeutic, massaging movements on your face and the heavenly smells that seem to cleanse the soul as well as the skin were so YUM. It made me want to invest a bit more in my evening skin care routine – so I spent a lot of time (and money) with a lovely lady at the Clarins counter in Croydon who gave me some lovely bits to try to add in to my evening routine (I’m a huge Clarins addict) – these things included evening aromatherapy shower/bath lotions and calming plant-based night treatments. Taking more time to wipe away the day not only makes me slow down, but also reflect on the day I’ve just had.
I take an hour for myself – now, usually I will tend to get in to bed earlier than Wayne who’s often glued to Sky Sports as part of his evening ritual (*eye roll*). So for me that means time to catch up on The Affair / Grey’s / whatever I’m glued to at the time. I love my bed and it’s the best place to retire to after a long day when the nasty PSA fatigue hits me. I will curl up with my favourite pink himalayan salt candle on which just adds to the #zenden vibes!
I invested in the best. product. ever! All candle/aromatherapy fans will have heard of Neom Organics. They have recently bought out a beautiful essential oil diffuser – their Wellbeing Pod. I have been eyeing it up for months in the lead up of it’s release, and so I decided to treat myself. It’s gorgeous to look at, it’s easy and safe to use (I can fall asleep and it will turn itself off after 1,2 or 3 hours) and of course the Neom oils are just incredible. I just invested in the one oil as they’re pretty pricey (but the full set is going on the birthday list as we speak!). They have four that you can use; ‘Scent to…’ De-Stress, Boost your Energy, Make you Happy and Sleep. I opted for the Boost your energy one which has lemon and basil in it and smells heavenly! Not only are the oils great for filling your home with the smell and instantly changing your mood, but it also works as a humidifier so it’s just perfect for my poor old non-existent immune system to help clear the air of nasty bacteria and help alleviate dry skin, sore throats and nose and help with any allergies too. I’m a little obsessed with it at the moment and have it on all the time. I’ve also been putting Lavender oil in it at night time in the bedroom (till I get my hand on the NEOM sleep oil) to help get me sleepy.
After doing a little bit of research into aromatherapy, it seems it’s not just stress it’s good for. It can;
Boost energy levels (black pepper, tea tree, jasmine, rosemary…)
Speed up healing and recovery (buckthron, lavender, rosehip…)
Be a powerful sleep aid (jasmine, lavender, chamomile, ylang ylang…)
Enhance our immune systems (lemon, eucalyptus, oregano, peppermint…)
Help with stress (lavender, ylang ylang, bergamot, lemon…)
Help to control depression (jasmine, lavender, chamomile, peppermint…)
Help with aches and pains (lavendar, rosemary, sage, peppermint…)
Today I’ve been working from home. I try and wfh around one full day a week but it does often end up being a bit more than that due to popping out to various doctors appointments each week as well as attending a rehab physio-pilates class every other week – which I loooove. My Physio is the best and she knows me inside out (I’ve been seeing her for the last 3 years every fortnight), but it’s in the complete opposite direction of both work (west london) and home, (south london) so I’ll often go to work in the morning, have my physio at lunchtime and then head home and log on from there for the afternoon. It works pretty well and my work are so good about it.
I try not to take for granted how good my work have been with me and my health over the last 4 years – I’ve been so lucky and they are so understanding. If I am having a rough day or wake up in an insane amount of pain (it happens) I can work from home. It’s pot luck whether I have my work laptop with me though! But if not, my mac will suffice as long as I have no skype meetings that day.
I’ll sometimes wake up with really bad joint stiffness in the mornings. Given that I live on a massive f-off hill, the morning commute can be reallllly painful on my toes and back. But, becuase I’m not clock-watched and am trusted to do the work and get the job done whenever / wherever suits me best, it really helps with my anxiety and I don’t have to stress that my manager will be wondering where I am at 9.00 on the dot. I’ll sometime limp in at around 10am and rather than being asked ‘where have you been’ it’s more likely to be ‘how are you? pain okay today?’ . Which is a real comfort.
Today the pain has been okay, though I am generally much better off sat in a proper office chair at my desk in the office. My kitchen table isn’t quite the right height and the sofa definitely does no favours for my joints. BUT. It’s cold outside and I’m doing lots of proof reading today, so the sofa will do perfectly, along with my favourite throw, himalayan salt candle on the go, and a mug of hot tea.
I’ve been really stressed about a few things this week, which has resulted in psoriasis rearing it’s ugly head on mine too. And all over my forehead today it seems. A cup of this tea each day (first thing in the morning on an empty stomach) is soooo good for my skin and helps clear it. It doesn’t taste too horrific either and is much better for me than coffee – caffeine just won’t help me on this occassion! It contains lots of red clover, nettle leaves, dandelion root, burdock root, chamomile and lemon. You can get it from most health shops or online, and it’s not that expensive either. Give it a go if you’re looking for a skin detox – it’ll really combat inflammation, puffiness, redness and any breakouts.
Right, that’s enough procrastination for this afternoon! I was planning on wfh tomorrow too as it’s friday but it’s back into the office for me – forgot my laptop charger didnt I. #Fail.
So last week I finally had the guts to share this blog. Honestly, I was really scared. Most people I know already know the headlines of what I’ve been going through recently with the PSA. It’s not quite the same though as writing everything down into actual sentences. Actual facts. All out in the open for all to see.
I was really touched to read all of the comments from people – I’m not embarrased to say that I cried at almost each and every one of them! I’m a softie I know. But just knowing you’re not alone is so lovely. So thank you.
This week has been full of positives –
Firstly – my Humira injections came through! Halle-bloody-lujah. This Friday I’m off to the Rheumatology dept at Guy’s Hospital to get taught how to do the injections myself. I’ve been told by many people not get my hopes up – there are a few different types of biologicals and I might not be lucky with the first one. But I’m not one to be pessimistic about these things – if I was I’d have given up long ago. I’ll keep you posted on how Friday goes.
Secondly – I did something for me this week. I’ve wanted proper hair extensions for years now. Having good hair is the ultimate confidence booster. And boy do I need one of those where I can get one! With the Chemo, my hair is really weak and it just isn’t growing at the moment. I finally decided to splurge and get a full head from my lovely hairdresser, Steph. I booked a day off work and had a full on pamper afternoon on Monday with Steph. And hey presto I have hair down to my waist (well, almost!) .
When life gives you lemons, flick your hair in it’s face…
I’ve finally done it… I’ve got my own bloomin’ blog! I have been pondering setting one up for so so long. For reasons I’m still not 100% sure. I mean, there are so many I should probably decide on just one (or in reality, I know for a fact I’ll touch on them all):
To share my experiences. Are they that interesting? Really? I absolutely doubt it. But I’m almost 100% sure I’m not alone in what i’m going through… so I’m hoping to connect with like-minded people with Psoriatic Arthritis (PSA) or any other chronic disease.
I also want to share what it’s like to have PSA. I will not be playing the victim, that’s not my style, but if I can help educate others what it’s like and how to understand those of us with PSA and our struggles in day-to-day life – well, that’d be something.
Therapy.They say writing down your feelings can help relieve stress and give a sense of calm. I’m not sure that many people will ACTUALLY be interested in what I have to say. But what the hell, it might just help me. Let’s see.
Ride the emotional rollercoaster. Some days are great, some are shite. Let’s see where we end up.
Fad-tester. I. LOOOVE. A. FAD. And I’ll buy ’em all. From physio equipment to healing crystals, veganism to accupuncture mats and silk pillows. I’m openminded and always on the hunt for more!
My name’s Jo. Joey/JoJo/Joanna (only when I’m in trouble). I’m just about to turn thirty next month and I live with my boyfriend in Crystal Palace London. It’s a bank holiday Monday afternoon, and I’m sat on my rug, LouLou (Louis Walsh once sat on it – don’t ask!), cup of coffee in hand, trying to work out where to start.