Fail-safe planning?

The winter months can be pretty daunting for those of us with Psoriasis and with PSA. With the chilly temperatures we’re much more prone to flare ups and Psoriasis breakouts. Going from hot to cold, the early morning chills, having the stuffy heating on at home; all things which can be troublesome.

With the Psoriatic Arthirits, I’m finding the frozen temperatures affect you even more; I’m having to get up earlier to get my joints moving and give my painkillers more of a chance to kick in, and I find I’m walking slower as I brave the coldness and joint pain at once.

December also usually means a huge spike in social activities; catching up with friends to celebrate and organising and attending work parties. It’s also the busiest time of year for birthdays with my friends and family; and as most of my friends are turning 30 this year, it’s definitely a time for partying! I also have to work out where in the country I am over the Christmas holidays – with separated parents at each end of the country, and finding time to co-ordinating seeing Wayne (either in Leeds or London) who also has his own plans in London can be stressful.  For the rest of the month I probably have maybe two nights in a week where I don’t have any plans at all. An easy task to anyone else I imagine, but I do have to just be that bit more careful.

Sounds like a really tough problem, right ;-). Ordinarily, no, but add in the anxiety, PSA and generally just not knowing how I’ll wake up feeling on each day… yeah you get the picture.

I’ve had a really really good last few weeks, with a 100% hit rate for attendance! So, for my own sake more than anything else I wanted to list my highlights since I last blogged…

  • Lasted the whole night at my Christmas party. Party organising is my absolute favourite; so there was no way I was going to have a bad night there. I was determined – and ultimately managed the whole night, without sitting at all, right until ‘lights up’. Yes I may have swapped to wearing pumps from about 11ish onwards, but who cares!
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  • Spent a weekend in Paris with some of my oldest friends. We had a brilliant weekend and I was seriously worried about f*cking up the plans, especially after my last episode of anxiety in Birmingham. In your face PSA – we walked over 12k each day all around the city in the freezing cold. I couldn’t walk quite as fast as everyone else but it really didn’t matter and we had the best time.
    Screenshot-2017-12-11 Alex ( alex_c_mcewan) • Instagram photos and videos
  • The weekend just gone I was in Birmingham again for my friend’s 30th; this time around was a completely different story to said last experience. Again, another kick in the balls to PSA. Even getting snowed in didn’t stop us from having a fab weekend, and we made it back in one piece with not a single hangover between us ;-).
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What helps me with my anxiety is the ability to be planned. I’m also having to take a few Mondays off of work in order to recover. Luckily I have a fair bit of holiday to be able to do that with this month. And it’s exactly what I’ve been doing today… heaven!

In other news, I’ve been able to lower my Methotrexate dosage by a quarter, which feels so good. I’ve also decided to take it as a weekly injection rather than orally. Mtx comes with so many side affects and I was constantly feeling so so nauseous and would have dizzy episodes now and again too.

So I’m now injecting myself weekly for the Mtx and fortnightly with the Humira.  My doctor is happy for me to start scaling back on my painkillers which I’m desperate to do. Though I might need to just wait for the Christmas period to pass and I can focus on that in January. Bring it on!

Joey

x x x

#WFH

Today I’ve been working from home. I try and wfh around one full day a week but it does often end up being a bit more than that due to popping out to various doctors appointments each week as well as attending a rehab physio-pilates class every other week – which I loooove. My Physio is the best and she knows me inside out (I’ve been seeing her for the last 3 years every fortnight), but it’s in the complete opposite direction of both work (west london) and home, (south london) so I’ll often go to work in the morning, have my physio at lunchtime and then head home and log on from there for the afternoon. It works pretty well and my work are so good about it.

I try not to take for granted how good my work have been with me and my health over the last 4 years – I’ve been so lucky and they are so understanding. If I am having a rough day or wake up in an insane amount of pain (it happens) I can work from home. It’s pot luck whether I have my work laptop with me though! But if not, my mac will suffice as long as I have no skype meetings that day.

I’ll sometimes wake up with really bad joint stiffness in the mornings. Given that I live on a massive f-off hill, the morning commute can be reallllly painful on my toes and back. But, becuase I’m not clock-watched and am trusted to do the work and get the job done whenever / wherever suits me best, it really helps with my anxiety and I don’t have to stress that my manager will be wondering where I am at 9.00 on the dot. I’ll sometime limp in at around 10am and rather than being asked ‘where have you been’ it’s more likely to be ‘how are you? pain okay today?’ . Which is a real comfort.

Today the pain has been okay, though I am generally much better off sat in a proper office chair at my desk in the office. My kitchen table isn’t quite the right height and the sofa definitely does no favours for my joints. BUT. It’s cold outside and I’m doing lots of proof reading today, so the sofa will do perfectly, along with my favourite throw, himalayan salt candle on the go, and a mug of hot tea.

wfh

I’ve been really stressed about a few things this week, which has resulted in psoriasis rearing it’s ugly head on mine too. And all over my forehead today it seems. A cup of this tea each day (first thing in the morning on an empty stomach) is soooo good for my skin and helps clear it. It doesn’t taste too horrific either and is much better for me than coffee – caffeine just won’t help me on this occassion!  It contains lots of red clover, nettle leaves, dandelion root, burdock root, chamomile and lemon. You can get it from most health shops or online, and it’s not that expensive either. Give it a go if you’re looking for a skin detox – it’ll really combat inflammation, puffiness, redness and any breakouts.

skin purify

Right, that’s enough procrastination for this afternoon! I was planning on wfh tomorrow too as it’s friday but it’s back into the office for me – forgot my laptop charger didnt I. #Fail.

 

Joey

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